Tuesday, July 12, 2016

Brain tumour? Why not?

So to recap, there were the five lost babies, the failed fertility treatments, the depleted bank account, the busted mind, the therapy, further depletion of the bank account (re: therapy), resignation, childlessness, a little more therapy, fragile peace.

Actual peace.

It took several years to get to the point where I was mostly okay with this life. I mean, never completely satisfied because of all the missing kids 'n stuff, but mostly okay. Happy even. I got into a cool groove with my niece and nephews and felt them filling in little gaps I didn't know could be filled, and I started to relax into this unwanted life in a way I didn't know was possible.

And then on my motherfucking birthday an optometrist told My Beloved that the weird test results from his visual field test could only mean two things: a stroke or a tumour.


I mean really, no fluff in the eye? No mechanical error? No, "I just got my license and I don't really know what I'm doing"?

Nope. Just a stroke or a tumour.

And, to make a long story short, of course it was a tumour. Of course. Because we don't do anything small around here. If we're going to lose babies, we're going to lose five of them. And if one of us is going to have weird vision issues, it's going to be because of a brain tumour. Obviously.

And just like that, we were once again thrust into a situation for which there is no survival manual. I mean, if you don't count medical textbooks. And we handled it with our usual weirdness. After the diagnosis came, we went out for hamburgers and bought Lego mini figures like there was nothing wrong at all. And we sighed and held hands and said how relieved we were to finally know for sure. THAT HE HAD A BRAIN TUMOUR.

I lied my way through the next two weeks telling My Beloved everything would be fine. Side note: I learned I can lie like a rug. It was truly some Oscar worthy stuff. In fact it was so good I almost believed it myself, at least when he was within arm's reach. But every day when he left for work all I could feel was the crushing weight of his absence, and it terrified me. I couldn't bear him not being with me because I was so desperately afraid that soon he wouldn't be with me.

To be clear, there are other very, very dear people in my life who I love and rely on - but he is my person. He is literally my better half (really - I do mean that literally), and he is also the only person who completely understands this weird life I lead because he leads it too. We are parents to the same missing boy and the same four little sprites who were too tiny for us to meet.

So in addition to all the lying, I did some of my very best praying during those weeks between diagnosis and surgery while he was at work. Actually, it was mostly begging and sobbing, but we'll call it praying.

I got so used to saying, "You're going to be okay" with conviction I didn't feel and confidence I didn't have that the lying became second nature. I hardly had to think about it. I'd hear him sigh, or catch him looking pensive, and the words would come. "You're going to be okay."

Because if you say it enough, maybe it comes true.

I did mostly think he'd be okay, but only because the alternative was too chilling to contemplate. All I knew was that 17 years wasn't even CLOSE to enough time to have together, so to think it was going to end in that operating room on that sunny May day was inconceivable.

And it didn't. He is here and the tumour is gone. Best of all, it was benign. Benign, thank God.

At today's 2-month follow up we got the official all clear. Not only is the surgeon very happy with My Beloved's recovery, the interloper is completely gone and no new hitchhikers have taken up residence in the meantime, so it's back to business as usual.

If you don't count all the blinking, staring into space, and muttering, "What the hell just happened!?"

Yup. Business as usual.


loribeth said...

I am so sorry for this latest curveball that life has thrown at you -- and so happy that things turned out all right in the end! Can I also say I am so happy to see a post from you pop up into my reader?? :) :) :)

Mrs. Spit said...

Bloody f$@$ing hell. That is beyond unfair. As delighted as I was to see your post, I'm so sorry this happened. Sending love and care.

The Nanny said...

Oh goodness. Well, I'm glad it's gone and was benign. But still, good grief.

Ps -- so happy to see a post from you!

areyoukiddingme said...

Holy Sh*t! I'm so sorry that you had to go through this - glad it has turned out OK, but wow... I would hope that's the last of the curveballs life has to throw at you, but that's just like inviting something else to happen. :(

Illanare said...

I am just reading this and my heart stopped for a second. I am so, so glad that it is gone and it was benign, but still - I can't begin to imagine.