Showing posts with label Dad. Show all posts
Showing posts with label Dad. Show all posts

Tuesday, January 10, 2012

The unberable lightness of being

It's not like I'm walking on sunshine and floating two feet off the ground or anything. But this morning it dawned on me that life is sort of good right now. Uncomplicated in a way it hasn't been in, well, in virtually my entire life, really.

We're not trying to have a baby anymore. So my body has ceased to be a science experiment/means to an end/poorly constructed baby-making machine. It's just my body again. Arms, legs, graying head and a busted uterus that can just fucking relax now, since it's not going to be called into action ever again.

If you listen closely, you can probably hear it sighing happily from all the way over there.

I pay little to no attention to bodily fluids. I have no idea what my temperature is on any given morning. I've stopped shelling out a fortune on sticks designed to be peed upon. I no longer mark the passage of time in 28-day units. I don't have to decide if just one more surgery or fertility treatment will do the trick. I no longer live in fear worrying about what one more loss would do to my already-fractured brain. And, perhaps best of all, the end of a cycle doesn't shatter me to my very core like it used to. Every single time.

People are no longer depending upon my body to produce a child, grandchild, cousin, niece/nephew. No one's crossing their fingers or praying or hoping or giving us knowing glances. The pressure cooker existence I once boiled away in has cooled to a lovely lukewarm bath.

The guilt is still there. It will always be there. I couldn't produce a living child, grandchild, niece/nephew. But at least the trying is over. We can all just agree that I failed and move on.

Or I can agree that I failed and everyone else can be mad at me for calling myself a failure.

Either way, we all move on.

And then there's the other shoe. The one that dropped on January 4, 2011 when I got the call that Dad had died. He got horribly sick (sicker than he'd ever been, which is saying a lot since he'd been in fragile health for 27 years), and after tenaciously battling a host of medical issues that would have immediately felled a lesser (or less stubborn) man, he quietly slipped away in the night.

I no longer panic when I hear the phone ring. I don't dwell on what it's going to be like "after" because I'm living it now. My stomach doesn't clench in anxiety when I pull up to their house. I don't have to wonder about what kind of day he's having - if he'll fall, if he'll die in front of me, if he'll be so confused he won't know who I am. I don't ache as I watch him suffer unthinkable fatigue, pain and indignities. Most of all, he is no longer suffering.

As I said yesterday, I am breathing these days. The good kind of breaths. Better than I've breathed in almost as long as I can remember.

My life is more about me than it has been in a very long time.

I'm not 100% carefree or without responsibility. Let's not get ahead of ourselves, here. But the fact is that I am living a more peaceful life right now. Work is plentiful enough, My Beloved is still beloved, my mom is in relatively good health, and I passed my annual physical with flying colours (which is astounding given the grief eating I did during 2011, not to mention all the stress).

Sorrow is still an ever present interloper, but it's a snarling beast I've mostly learned how to tame. I know to lure it into its cage when I need relief, and let it out to be walked when it needs to stretch its legs.

We have it mostly figured out, me and Sorrow.

So life is just...life these days. Quieter, less complicated and much prettier than I've seen it in a very long time.


I could get used to this.

Monday, January 09, 2012

The long goodbye

The other day I read an article about the formalized mourning rituals observed by Jews. Being married to someone who is half Jewish, I'm familiar with some of those rituals - like sitting Shiva for 7 days, and the unveiling of the monument one year later.

But what I didn't know is that they understand that that grief takes a solid year to truly process. They figured this out, wrote it down, handed it out and now they all just know to treat each other a little more gently when the heart is healing post-loss. Imagine that.

It has now been one year and five days since my dad died.

Losing Thomas taught me that you don't get over a loss, you simply learn to live with it. So I knew I wouldn't magically feel like "the old me" when the sun rose on January 5th. I knew I would feel like the new me: the one who now lives in a world where my dad does not. The one who lost someone whose voice has been dear to her since before she was even born. But the one who is, nonetheless, still alive.

That's why I also knew I'd probably feel like I could take real breaths again on January 5th. Long, slow, deep ones - not just short, quick gasps designed to keep me alive.

And I did.

The hellish first year is behind me.

And I can breathe.

Monday, September 26, 2011

Friendship's wings

My friend died on Saturday.

There are a million and one things to say about this, but the foggy swirl of grief and remembrance is making me nervous that I'll forget something important - that I won't eulogize her in the way she deserves.

So I will just say this:

She went to visit my dad one day while he was in dialysis. They were receiving treatment in the same hospital; one for kidney failure, one for cancer. She had never met him, but she wanted to stop in and say hello to the man I'd talked so much about. 

Like everyone to whom I introduced Liz, he was instantly smitten. After their brief, and only, meeting, he asked about her constantly - even when he could finally no longer remember her name. And he prayed for her fervently. One of the last things he ever said to me was that he was praying for her, and that I was to tell her.

On my last visit to Liz, when she was so weakened that it was sometimes difficult to hear or understand what she was saying, she told me, through tears that threatened to shatter me, that she would look after my Thomas. Over and over again, she said she would look after my boy for me.

A mother leaving her own children here, pledging to take care of mine there.

She had acknowledged her death before. We both knew she was going to die - she was frank, was Liz. But this time I knew she could see it. It was both frightening and beautiful all at once. She was close enough to begin planning what she would do once she left us, and I was in grateful awe that she chose to make my boy part of it. And that, God bless her, she made sure I knew.

I've only known Liz as someone journeying with cancer. I met her shortly after her diagnosis in 2009. But cancer never defined her - she refused to let it. She lived fiercely and fully, and with more grace, courage and humour than I ever thought possible under such heartbreaking circumstances.

Someone who takes time to visit an old man they've never met in dialysis while on her way to chemotherapy? Well, that's just the best kind of person there is - and someone I'm so proud and honoured to have called my friend.

Love you, Liz. Godspeed, and thank you for watching over my boy.

Tuesday, May 17, 2011

81

They want me to write about rental housing and life insurance and private home care for the elderly, but the only words that really matter today are: I miss you Dad. Happy birthday.

He was one of the best people I've ever known. And I'm almost positive I'm not being selectively blind about this, viewing him through a gauzy haze of grief and longing that's blurring out his rough edges. Because he had those. He totally did.

But he also taught me to notice things like a golden autumn leaf or a long dormant tulip bulb poking its way out of the earth in early spring. He saw small beauties everywhere, and the wonder he had for those everyday miracles radiated from him like summer heat off the sidewalk. He had a way of talking about the people he'd lost that somehow showed more of his love for them than his sorrow over losing them. He was joyous, relentlessly pursuing the things that made him smile and brought him comfort. He fully immersed himself in everything he loved: church, sacred music, sports memorabilia, and his family. He was settled, secure and confident about himself and the people and things that he believed in.

He also once hauled some guy halfway out of his car window and punched him, punishment for a driving offense of some sort that Dad felt wouldn't otherwise be properly meted out. In his much younger years he took to the streets of Toronto late one night looking for crimes in progress that he could bust up. Irish temper. He had that too.

But the Dad I knew best went to Christmas craft shows with me. Once he bought himself a tiny gingerbread house - something that still somehow makes me want to weep, because that's just the kind of person he was: a great big man with a great big laugh who won (and lost) bloody fights when he played hockey, and bought gingerbread houses with his daughter.

Last summer, as we sat on the deck while he ate an old person's snack of digestive cookies and water, he told me he'd had a good, happy life. He reminded me that he always managed to find joy, especially in simple pleasures. His eyes shone, looking beyond me into the past.

And oh, I miss him. I first knew I would lose him when I was a terrified 13-year old sitting in the emergency waiting room late one winter night. Twenty-seven years later I finally did. And it was every bit as awful as I'd been imagining it would be for all those years.

But I'm looking at spring buds, and taking solace in the simple pleasures that make me happy. Because that's what he taught me.

I miss you, Daddy.
oxox

Thursday, April 28, 2011

One moment

About a month and a half before he died, I had a conversation with my dad about death. I didn't know if it was right or fair, given his incredibly frail health, but I desperately needed to talk to him. I wanted to tell him about the vision I had of Thomas pushing through crowds of family and friends to be the first to greet whichever one of us was to arrive next.

I said "whichever one of us". I knew it would be Dad.

He smiled. And got quiet.

To fill the silence I blathered on, making a vague reference to some pretty severe doubts that had been plaguing me since he'd gotten so sick, about whether or not there even was a heaven.

In hindsight this all seems so cruel - to try to seek spiritual solace from someone staring death in the face, someone getting weaker every day and fighting so hard to live. But I couldn't help myself. I knew I was losing him. I was watching him slip away right before my eyes. The enormity of that impending loss made me realize exactly how desperately I needed to know that this is not all there is. That I would see him again, even if he had to leave me for a while now.

It was easy when he was younger and healthier. It was theoretical, the separation.

But when you look at someone and see death staring back at you, sometimes you say things you might otherwise not. And I hope he has long forgiven me for forcing him to talk about dying in the dialysis waiting room that day.

He told me he wasn't afraid of death. He was a man of immense, unwavering faith. He said if he happened to be wrong, which I know he didn't think he was, he'd never know the difference so it didn't concern him.

He said the only thing he was afraid of was the moment of death.

And I didn't know what to say, except to agree. And to feel sick for making him reach in and poke at that one little weak chink in his armor.

And then he was gone.

He would have loved to tell me about the moment of death, once he finally experienced it. As weird as that sounds, I know he would have. He loved to tell stories, especially if they were funny, but also if he knew someone was really, really interested in what he had to say. And I am. Oh, I am.

He would lean forward in his chair and said, "Say, do you remember that day in the waiting room when we were talking about dying? WELL..." then he'd pause for emphasis, lean back, and proceed to tell me that it wasn't as bad as he'd feared. Or that it was worse. Or quick. Or agonizingly slow. Most likely he'd say it's not worth worrying about while you're still alive because there's all sorts of important living to do then. And if that was his message, he'd probably wag his finger at me with his head tilted and his stern face on while he was delivering it.

And I would listen to the sound of that lovely voice, taking in all the details, nodding and commenting and laughing at the funny bits I'm sure he'd have managed to find in it all. Just like always.

It's been so long.

Monday, March 28, 2011

Tired

I'm so tired of being sad. Bone weary exhausted, really.

I'm not wallowing. Honest. I have newly-purchased cans of paint and two bathrooms ready and waiting. I have crochet projects on the go. I have work scheduled. I have a to-do list that I follow. I have lunch plans with a friend on Friday.

The thing is, when I'm in the midst of the busyness, it's all good. But when I pause to figure out what that nagging feeling is - that sense that someone is watching me, that something is wrong, that I've had a bad dream, that I'm late for something - I realize it's sadness quietly waiting to be acknowledged.

And so I cry. I cry for my dad - for all the pain and indignities he suffered in the months before he died. I cry for me, because I miss him so much. I cry because I haven't yet figured out what to do with this unplanned life. And I cry because that scares the bejeezus out of me.

Fate has been clever and methodical in the doling out of disaster. A miscarriage in 2003, a miscarriage in 2004, Thomas' birth and death in 2005, fertility treatments in 2006/7, a miscarriage in 2007, more fertility treatments in 2008, dad's illness in 2010, his death in 2011. These things seemed to have spaced themselves out, giving me juuuuuust enough time to recover from one disaster before tossing some new horror my way.

The cumulative effect is like sitting beneath a pile of elephants trying to smile while I'm being crushed to death.

This is life. I know that. No one escapes unscathed, and in the midst of the horror is unimaginable beauty. I know that. I know that. I know that. There are bigger disasters. There are crueler fates. There are harder lives.

But, still, this is mine.

The other day I was telling My Beloved that I barely remember the girl I was before that first loss in 2003. I miss her, I told him. She's like a brightly-coloured character in a book - happy and innocent. Not without worry or sorrow, but still buzzing with light and energy.

In his wisdom and kindness he acknowledged her loss, but told me that the girl he's now married to is not just a shadow of the one he once knew. I am better, he says, in some ways. I didn't ask for specifics. I was too stunned and overjoyed to care.

Better. At least in some ways. That's good to know.

I know the fatigue of sorrow will wane. And maybe I'm thinking too hard; worrying about it too much. It hasn't yet been three months since the most recent elephant, after all.

But it would be nice not to be so grief-weary. So very, very nice.

Sunday, March 20, 2011

Missing

Years ago, not long after Thomas died, I read a post by a fellow babyloss blogger who was struggling with an overwhelming desire to make herself look as outwardly grief-stricken as she felt inside. She wanted to cut her hair, tattoo her body, cut patterns into her empty stomach - do something radical and drastic so that people would know, just by looking at her, that she was broken on the inside. She wanted the mark of grief.

It scared me. But I understood.

I started thinking about her - and the strange need for grief to be known and recognized - this morning at Mass. I'd made small talk with one of the office staff on the way in - a woman who helps me organize the annual Mass of Remembrance for bereaved parents. We both hate the heat, but wished it was a little warmer today. And isn't that funny, because in a few months we'll both be wishing for a crisp day just like this one. And isn't it a shame that while it's going to be warmer tomorrow, it's going to be rainy too. Blah, blah, blah.

When I finally got into the church, I sat down and started thinking about my dad, as I often do when I'm alone and quiet with nothing proper to distract me. Driving is a particular hazard. It often ends in tears.

Anyway, I was thinking that I display no outward sings of grief. I'm clean, my hair is freshly cut, I wear makeup (a necessity to hide the circles and bags my 40s have gifted me), I smile when appropriate, I attend meetings, I work. I am functional in all the ways that matter.

But inside there is so much grief. And no one knows.

It makes me feel like I'm existing inside a plexiglass dome, visible, but somehow unreachable. And thoroughly unknowable. Most importantly, separate. Always separate.

I started wondering why exactly it is that we need to share grief with others. It's such a personal thing that no two people feel or experience the same way - even if they've lost the same person - and yet we're desperate to find people who will listen to us when we need to talk about the aching emptiness a loved one's loss has created in our lives. We want to share, in explicit detail, what it feels like to be without that person; what it's like not to hear their voice tell us we are loved, what it's like to see the empty chair they once sat in, what it's like to want to tell them a story and forget, for a split second, that they are no longer there to hear it.

I want everyone to know how much I miss my dad. How I still cry for him. How agonizing it is to be separated from him. How I still can't fathom that he's really gone and is never coming back.

How I feel like I'm once again hollow inside, waiting to be filled up with whatever it is that filled the empty space Thomas left behind.

And no one knows.

And I don't know why that matters. Except somehow it does.

Wednesday, January 26, 2011

I want happy

Slow work weeks for freelancers are distressing. Slow work weeks for grieving freelancers are dangerous.

With nothing pressing to occupy your mind, it's especially easy to get lost down an internet rabbit hole. Eat the wrong things. Dwell on what-ifs. Wander aimlessly. Bother sleeping cats. Then eat the wrong things and start the whole cycle all over again.

Lather, rinse, repeat.

Today I found myself curled up on the only cat-free spot on the bed begging my Dad - who I'm only partially convinced can even hear me now - to help me find happy again.

I want happy.

My Beloved and I lost our first baby a little over 7 years ago. I have spent almost all the time since that moment being afraid or sad. Desperately so in both cases. Sometimes at the same time. There were bits of hope and moments of happy sprinkled in, sure, lots of them. But mostly I feel like I've been sad for such a very long time.

I want happy.

So I sat up and made a mental list of things that make me happy, thinking that was a good start. But I cried the whole time. I am responsible for my own happiness, but that responsibility is so overwhelming right now that I don't even know where to start. It makes me tired and defeated just thinking about the effort of it all.

I want someone to walk in with happy on a silver platter. A great huge plate heaped full with more happy on it than I could ever possibly need or want. An excess of happy. Effortlessly won.

But that's not the way it works. So I'll press on as I have been; as best I know how.

I'll get lost online, eat crap, cry, move quietly from room to room, and pester the cats while I wait for work.

And while I try to figure out a way to find happy again.

Friday, January 21, 2011

The sweater

I have my Dad's sweater hanging in the closet in the sitting room. It's the butter-yellow one with the faux wood buttons that my mom made so long ago that no one can remember exactly when; the one he wore to dialysis all summer long; the one that was finally deemed too raggedy and was replaced by a navy blue store-bought cardigan in the Fall.

But it slipped into rotation every now and again. And it's what he had on the last day he was alive. I found it at the bottom of their basement stairs, along with the shirt he'd worn to dialysis that Monday, hastily tossed away out of sight while my mom and sister waited for the coroner. And then, finally, the funeral parlor to come and take him away.

I brought it home and washed it. And I hung it in the closet that would have been Thomas'.

I'm not sure what I'm going to do with it - it's pilled and has a small blood stain on one arm caused by the ever-present itchy rash that plagued him. A side-effect of dialysis, we were told.

But I had to have it. I sat with him in the waiting room so many times as he wore that sweater. I watched him walk into the treatment room, slightly hunched and shuffling, with that butter-yellow sweater hanging off the shoulders that used to be broad and strong. I'd retrieve it from his bedroom when he'd forget to put it on. I'd help him into it. I hugged him hello and goodbye so many times while he was wearing it.

I needed it.

Maybe I'll wear it. Maybe I won't. But I need it here with me just the same.

I've only just started not needing to have lights on at dusk in rooms we're not using. When Thomas died, nightfall suffocated me, and I wanted to banish it before it had a chance to take a choke-hold this time.

But it's been a kinder sort of healing, and after not quite two and a half weeks the lights aren't necessary any longer. I've also stopped needing to have the TV on while I fall asleep. We still do it every once in a while, but I don't panic at the thought of falling asleep in the dark anymore. And my brain is quieter and lets me slip into sleep much easier now too.

So there's the sweater. And there's the darkness. And for now, I'm living comfortably enough with both of them.

Saturday, January 15, 2011

11 Days

My dad has been gone for 11 days.

Separation by death is agony. The new, awful distance between you rubs your soul raw, shredding you from the inside out as you push forward through the busyness of sleeping, eating, working.

I keep thinking of things I want to tell him. I used to stockpile bits and pieces to talk to him about while we were in the dialysis waiting room - things to distract him or amuse him. Sometimes they were things that were so exciting to me that I couldn't wait, and told him in the car on the way to the hospital.

He was the kind of person who you wanted to run to when you had something to say that you knew he'd want to hear. He lit up. He laughed from his toes. He pounded his fist with sympathetic rage.

Sometimes, for a fraction of a second, I forget. And then I am frozen with this thing I want to say sitting quietly unspoken in my head as I remember. 

When my mom woke me that morning to tell me he'd died in his sleep, I didn't cry. I hung up the phone, looked out the window and thought, "So this is what it looks like without him here."

It looked the same. And I couldn't understand how that could possibly be.

I miss him in a way I can't miss Thomas - and in a way that confused me for the first few days. There's a hole where Thomas should have been, but there's a hole where my dad was. In those first, awful days it felt so much worse than when Thomas died.

Because I knew my dad.

I've finally decided that it's okay to miss them differently. I don't know why this preoccupied me so much, but I was worried about missing one more than the other. I was worried about what that might say about the love I had for each of them.

But as it turns out, I love them both and miss them both - for a million different reasons. And for two common reasons: because we three are a part of each other, and because they both belonged to me.

His hands are gone. He can't hold mine anymore. But I feel him guiding me through these sad, strange days - urging me onward and reminding me that life does go on. And that it can be wonderful, even still. 

Because he led by example.

The night he died - before I even knew he was gone - I cried quietly in bed wondering how on earth I'd live without that love when the time came.

I now know that it's still there - that his love will always be with me.

And the friends who came to the visitation and the funeral - and who send cards, flowers, chocolates, food, messages and Mass cards, and left treats at my door - have demonstrated that there is abundant love to be had all around me. I'm once again in grateful awe of the way friends seem to find a way to fill the awful empty spaces with their concern, friendship and love.

I miss my daddy.

But I'm doing okay.

Saturday, January 08, 2011

Godspeed

On January 4th, sometime in the wee hours while he was tucked up in his bed, my dad's sweet and much-loved heart quietly stopped beating.

I'm sure I will be able to speak more eloquently about this in the days to come, but right now I'm spent. Yesterday afternoon, under cold but mercifully sunny skies, we laid him to rest in the same cemetery where our Thomas lies.

And I miss him like crazy. I can still feel the last hug I got from him on Sunday night after dinner. Tight, tight, tight, despite how incredibly weak and frail he was. And as he held me, he kissed me on the head as though I was a child again.

I lost my son - my only child. I know that putting one foot in front of the other is how you carry on despite the suffocating grief and sorrow's unrelenting fatigue.

But I miss my daddy. I miss him so very, very much.

Monday, December 06, 2010

This, that 'n the other

On Saturday we had our 6th annual Family Christmas Tea, a tradition I started that first Christmas without Thomas when I was desperate to make new memories in place of the ones I'd imagined we'd be creating (with a 9-month old boy dressed in the santa suit his Grandma had knitted for him).

I've been baking and prepping for the last three weeks, and at 2:00pm on Saturday afternoon the plastic wrap came off the trays of goodies, and I scooped the whipped cream for the diabetic gingerbread cake into the candy cane bowl as my family walked in the front door.

The best moment of the day was when my dad, snuggled into the comfiest chair in the family room by the fire, smiled and said, "This is exactly where I wanted to be today."

The second best moment of the day was when my nephew, giggling and sticky with candy cane face, played charades with me in the kitchen.

It is possible, as it turns out, for your heart to both melt and break all at the same time.
___________________________________________
A few weeks ago my sister handed me a little round paper ornament. It was a copy of one that was going to be hung on the Christmas tree at the hospital where Thomas was born, in his memory.

By coincidence (one that has made my dad's health issues all the more emotionally complicated for me), it's the same hospital where my dad spent three months this winter/spring, and where he now receives dialysis three times a week.

On my way out of the dialysis waiting room on Friday, I spied the massive Chirstmas tree in the hospital's atrium covered in hundreds and hundreds of the little round paper ornaments purchased by family and friends in memory and honour.

I remembered the ornament that's now stuck on our fridge, and thought I might try to find its mate on the tree.

The tree has to be upwards of 20 feet tall and easily six feet wide. There are, as I said, hundreds of paper ornaments covering it from top to bottom.

And I found Thomas' almost instantly, about seven feet up and facing directly into the renal unit.

So I know he's watching over his Grandpa, at Christmas and always. Just like I asked him to.
__________________________________________
And speaking of Christmas, I got an early present the other day when I opened up my e-mail and found I'd been given a really sweet blog award by Lady Pumpkin! This is my very first one, and I have to say I was chuffed. I really was.

As per the instructions, I'm now passing the Cherry On Top award to the following five wonderful women who always manage to say something that makes me smile, cry, nod or laugh - sometimes all in the same post:

Mrs. Spit
Loribeth
Pamela at Silent Sorority
Emily
Justine at A Half Baked Life

Here are the rules: Link back to the person who awarded you, and then pick five blogs to pass the award along to. Make sure to comment on the awarded blogs so they know they’ve been picked.

Thank you again, Lady Pumpkin! I'm glad you think I'm deserving of a cherry on top!

Thursday, November 25, 2010

Yeah, it's just not fair

Life is such a mental exercise sometimes.

Yesterday morning as I was getting ready to leave to take my dad to dialysis, I suddenly stopped dead in my tracks, momentarily overwhelmed by what a seemingly constant struggle life has become.

I'm still trying to navigate my way through the muddy waters of childlessness (complete with new and dazzling special effects and stomach churning surprises at every turn), and at the same time I'm watching my dad slowly slip away, and desperately trying to cope with the grief that creeps into my weary head when I think of how little time I know he has left.

One of the older dialysis patients had his wife, daughter, granddaughter and two great-grandsons with him in the waiting room yesterday. The oldest boy, just big enough to be out of a stroller, was simply booming with little boy energy - something pretty foreign in a waiting room cluttered with wheelchairs, motor scooters, oxygen tanks, and tired patients.

I couldn't help but smile at them.

And then I couldn't help but feel empty as I watched the sweet scene unfold in front of me. My dad is easily as old as that great-great grandfather. I looked at their big, growing family, and I just felt so sad and defeated. And then, of course, guilty for not being able to give my family the extra light and life that two little boys - or even one little boy - can bring.

Light and life are markedly absent from our family right now.

I stared at the boys and their mom and her grandparents wondering what it must feel like to have so much pulsing, vibrant, loveliness surrounding you in such sad, desperate times. And I thought about how sweet it must be to live in a world where the proper order of things (with its tidy, A always follows B, reality) provides a measure of comfort and peace during difficult times. Old people get sick and die while babies are born, live, and nourish the family with fresh hope.

I couldn't take my eyes off the family. Watching them was an exquisite sort of agony, but I just couldn't look away. Mercifully, they left soon after their husband/father/grandfather/great-grandfather was called into dialysis.

And order returned to my world. Just me and my dad. No little boys trailing along behind to remind us that life does go on and that we will not be forgotten.

I've been trying, of late, to focus on my blessings - of which there are many - to keep myself from sinking into a self-pitying funk from which there is no return.

It works. Mostly.

But I'm still angry that this is my life right now. I'm angry that we're surviving more than we're living. I'm angry that joy has to be so hard won. I'm angry that my dad is suffering so much, and that we're all suffering the helpless agony of not being able to make him better.

It's not fair, it's not fair, it's not fair, it's not fair!!

But I know it's up to me to figure out a way to pry the good from all this and make my life about more than just the cumulative effects of its losses and sorrows and struggles.

I just hope I can muster the energy to do it. Again.

Wednesday, November 03, 2010

Notes on a madwoman

I bought new sheets today - but not just regular old sheets. Fleece sheets. Fleeeeeeeece. I saw them somewhere last week and have been dreaming about them ever since. When I spotted a gorgeous set at Costco today for just $31, I grabbed them.

They're going to take up a stupid amount of room in the linen closet when we're not using them, but it'll be worth the annoyance during the warm months to be cuddled by a queen size mattress-shaped teddy bear all winter long.

I took my dad to dialysis today. We needed someone to be there to make sure the shot he was getting wasn't a duplicate flu shot. He has a lot of trouble hearing and even more trouble remembering, so he came home on Monday afternoon with sketchy information about the nature of the shot.

Always one to escalate the seriousness of a situation beyond reasonable levels (particularly if I have an entire night to think about it), I decided I needed to make sure he was okay myself.

And the sheets, they came later. A carefully planned reward.

I can't figure out if this is a healthy coping mechanism or just a crutch. But whatever. I have new sheets!!!

Fleeeeeeece.
___________________________________________________

I've been clenching my jaw like a madwoman on crack lately. Not that I know what a madwoman on crack would actually do with her jaw, but I suspect at least some of the time there'd be some vice grip action going on.

The last time I was at the dentist I was soundly chastized for my grinding activities. So much so that she actually took a picture of one of my more seriously worn teeth and blew it up on screen so I could get a really good look at it.

It was bigger than my head. Alarming for that reason alone, frankly.

She then proceeded to show me one of her own perfectly formed, pristine teeth - the same one as the mangled, head-size one still leering at me from the computer monitor.

It was horrifying and humiliating all at once.

God, I love doctors.

I'm kind of hoping I get a lecture on grinding at my next appointment (which I need to make soon so they'll stop leaving messages for me in that cheery, "it'll-be-quick-and-painless-and-really-fun-and-happy" dentist tone they use when they're trying to lure you in for a cleaning). I might need to explain to her - at length and in great detail - exactly why I'm a helpless slave to the grinding, especially now.

I bet that would be even more fun than taunting someone who grinds with your magical, perfect tooth.
__________________________

I neeeeeeeed to start getting some exercise. I need exercise way more than I needed those sheets. And probably more than I need to go to the dentist, truth be told.

The stress is killing me softly. And fattening me up nicely.

I reward myself a lot - with fleece sheets sometimes, but more often it's with chocolate. And I really must find a better way to cope with the stress of worrying about and caring for my parents - and then worrying about what bits of my own life are sliding while I'm preoccupied with them.

I worry all the time. Then when I do something hard, I reward myself with crap I shouldn't eat or stuff I don't need to buy. Then I feel guilty. Then I worry about that for a bit, then I go back to worrying about whatever it was that I was worried about before I decided I had to reward myself.

And so on, and so on.

I'm clearly in a downward spiral of chocolate eating and sheet buying and endless worrying.

Maybe I'll go for a walk tomorrow morning after a good night's sleep on my new fleece-y sheets. Which are, of course, chocolate-coloured. I'm nothing if not consistent.

Tuesday, October 12, 2010

Fire

On Friday as I was leaving the dialysis waiting area after my dad was summoned in for his "oil change" (as he used to call it when his mind was still a little fuzzy), I stopped briefly to talk to one of the hospital volunteers.

She's an older lady herself - probably in her mid 60s - and I have long suspected that she has a tiny bit of a crush on my dad. She lights up when she sees him, teases him like a schoolgirl, and has also been known to pet him. Like, literally - she strokes his arm like she's petting a cat. Friday she went to far as to pat his face, cupping his chin in her hand for a brief moment.

Were it not for the fact that she's a very kind woman - and really no competition for my mom since my dad has only ever had eyes for her - I would probably have already issued a passive aggressive smackdown. But she's entirely too sweet for that sort of thing. And, really, why should I mind that someone shows my dad a little extra kindness?

There's often not enough to go around in this world. That he gets extra doses when she's on call is fine by me.

So on my way out on Friday, she asked me if I thought it upset him that she pokes fun at him. I smiled and told her no, that he eats that sort of thing up (he is a man, after all).

She then went on to say how sweet he is, and that he seems like a good, kind person who has lived a good, happy life. She sees a lot of old, broken people filing past her as she greets them and checks their names off the list. My dad is no exception, held together by spit and tape the way he is. But she has somehow managed to see beyond the old, sick man he's become so dreadfully quickly. I don't know what her gift is, but with just the briefest of contact each week, she was able to see right into his soul. And was kind enough to tell me what she saw.

It's what I see too, of course, but it made me feel so good to know that what I know isn't a secret - that it's still obvious, even in the hardest and saddest of circumstances. As beaten down and as sad as I know he sometimes feels, he still radiates an inner light that is visible for miles.

As I drove back to have lunch with my mom, I thought about how incredible it is to have someone see you that way; to have someone feel the goodness and kindness radiating from you like the heat from a bonfire on a chilly autumn night.

So along with learning the ukulele (which I'm still determined to do, despite evidence to the contrary in the form of a thick layer of dust on the poor little thing), my new life goal is to try to be the kind of person my dad is so that one day someone who doesn't know me - or anything about me - might feel that kind of warmth too.

Maybe this isn't something you can aspire to. Maybe it's just something you have to have without trying - or even knowing. But I will never forget that conversation with the hospital volunteer, or the light my dad manages to bring to her face with the power of his own.

Monday, October 11, 2010

Thanksgiving Day, 2010

This, this is what I'm thankful for this year.
I love you, dad.

ox

Monday, July 26, 2010

One more time

I used to think it was only me. Not surprisingly, given my penchant for catastrophizing, I'm pretty sure that I was the only one who routinely (as in every single time I walked away from him) wondered if the last goodbye I gave my dad would be the last goodbye.

I would watch him waving from the window as we'd pull out of the driveway, and want to curl up in a ball and cry, sick with worry and despair.

In my defense, he really is that sick. Has been for years. First a bum ticker (with a 1998 cardiac arrest thrown in for added excitement), then diabetes, and now end stage kidney disease on top of everything else.

But, by some miracle, he's still here. 

In lighter moments I joke that he might be immortal. Because honest to God, I've never known anyone this sick to continually battle back from the brink. And there have been so many brinks over the past 26 years since his first heart attack; so many times the situation looked dire, only to be turned around by the smiling Irishman with the big laugh and twinkling eyes.

But this time it's different. He's fighting as hard as he can, but I know in my heart that there is well and truly not much time left.

And now, I think, so does he.

There is more weight in his hugs. They last a fraction longer. They are tighter, despite his frailty.

It startled me on Saturday. We had everyone over to celebrate my mom's 70th birthday, and as they piled out the door with presents and leftover dessert in hand, I hugged him goodbye and told him I loved him. And he held on. And squeezed.

And in that moment, I knew he knew it too.

I know what he was saying with that embrace, and I closed my eyes against the truth and hugged him back, willing it not to be our last goodbye.

Willing time to stop and love to cure and hope to best inevitability.

And then I did the only thing I could. I let him go. One more time.

Monday, March 29, 2010

I never prepared for this

But then again, who does? Who can?

My dad is in the hospital. Three weeks tomorrow. Last weekend he nearly died from septic shock after somehow contracting pneumonia, a blood infection, and a urinary tract infection.

He was this close to being released. This close to being back home in his chair in the window. In his own bed. In his little garden checking for spring buds.

Now sometimes he doesn't even know who I am. His blue eyes stare blankly back at me without so much as a flicker of recognition. This morning he thought he was talking to his mother on the phone. She's been dead for 44 years. He was talking to my mom.

I'm not prepared for this.

The staff seems nonplussed by his confusion. They brush it off and hint vaguely that it should go away once his body finishes fighting so hard.

His brief moments of lucidity keep me sane. But they're few and far between and until we get definitive word from his ever-elusive doctor that this will go away, I can barely breathe.

Three weeks ago tomorrow was Thomas' birthday. We spent it in the ER watching my dad gasp for breath in the morning, then cleaning up the mess the paramedics made of my mom and dad's house in the afternoon.

I'm not equipped for this.

I'm just not.

Friday, March 05, 2010

It's like Monday all week long...

Today at a light I found myself stopped behind some big brown minivan/SUV type thing with a cute little round bumper sticker that read, "I love my twins!" in happy red lettering.

And all I could do was shake my head, look to the sky, smile and admit defeat.

You go me, God. You got me good.

I'm so wracked with anxiety over my dad's health that I have to concentrate on remembering how to walk. Breathe. Blink. I'm hurting from missing my little boy so much that I'm surprised I'm not actually bleeding.

So, you know, good to know some happy family out there loves their twins and feels the need to tell every car that happens to be driving behind them about their familial joy. Couldn't have lived another moment without knowing that the brown minivan/SUV people love those rascally little twins.

I would have loved mine too.

There's never a good time of year for someone you love to be seriously ill. Never. But right now? My God, my mental resources are so depleted from the double whammy, I don't know what to do with myself.

So I've been walking. Somewhat obsessively. I found a site that lets you map your routes and then post them in a training log that adds up your accumulating kilometers and keeps track of the number of calories you've burned to date. This is the perfect thing for someone who desperately needs to fixate on something she can control.

11.6km so far this week.

If only I could outrun my fear and sorrow I'd be set.

Monday, February 22, 2010

Dad

I know her well enough to know that the phrase, "Don't worry, everything is okay...", means nothing when it's said with palpable fear that I recognize from 26 years of straining to hear the truth in words meant to comfort and distract.

Everything is not okay. I've known that for a while. When I opened up my eyes from the deep sleep of babyloss grief and saw just how old they've become in the last few years, I knew everything was not okay. Not anymore.

I've just pretended otherwise because it was easier that admitting that his heart is failing rapidly. I can't bear to think of that heart being stilled. I can't bear it. So I've been stubbornly burying my head as far down into the sand as it'll possibly go and pretending that I can't hear or see what is achingly obvious.

His heart is failing.

In February 1984, during an ordinary school lunch period, I found out that fathers aren't immortal. I found out that a dad so strong he used to be able to turn me upside down, lifet me up and let me walk on the ceiling, is only as strong as his heart.

In June 1998 I comforted myself with the knowledge that he probably had another 10 - 15 years, according to the doctor who implanted the defibrillator following his sudden cardiac arrest.

In August 2004, while pregnant with Thomas, I learned that even sickly fathers can be as strong as an ox; that they can survive defibrillator replacement surgery at 74 and thrive in only the way a stubborn Irish father with a bum ticker can.

I won't grieve before it's time. I won't. He would hate that as much as he hates knowing he's eventually going to be the cause of such awful grief.

So I won't.

But I can't promise I won't still cry every once in a while. Someone with a heart as loved as his should expect nothing less.