Back to school

Thomas would have started grade two this week. On the first day of school, I lay in bed and told him about the day that would have been. The special breakfast I would have cooked, the way we'd have walked to school together, the treat I'd have made him to snack on after school while he told me about all the adventures he'd had as a big boy in grade two.

Then I got up and carried on with my day. I don't remember what I did, I just know it was painfully ordinary.

Back to school pictures, which began popping up on Facebook back in mid August as children of my American friends headed back, reached their agonizing peak this week. The annual assault.

I would have done it too, of course. Thomas all dressed up in his first-day best, smiling at the camera as he headed out the door to grade two. I would have sent the picture to his grandma and his Auntie Kathy. And his bubby and nonno too.

I would have.

Ha. Would.

It was wearying. My last grief-frayed nerve about to snap on Tuesday, when a new friend e-mailed me and asked how I was coping with the onslaught. She barely knows me. We've met once. But she has been a staunch supporter of Thomas' Random Act of Kindness Day since a mutual friend told her about it a few years ago, and she has a rare kind of sensitivity that I'm discovering is like a cooling balm on a sunburn.

A blissful salve on time-worn grief.

It didn't occur to anyone else. And nor should it, really. I'm not the centre of anyone's universe but my own. At seven-years old, my grief is seasoned. And besides, I don't tell people that eleventy-billion milestone pictures coming at me for two solid weeks eventually starts to erode the stitches holding my heart together. So how could anyone have known?

But thank God for that one friend who did think to ask. It's all I needed.

All the bereaved moms I know say the same thing: every once in a while we just want someone to acknowledge our loss. Not all the time and not out of guilt or obligation. But maybe once in a blue moon; just a quiet nod to the ongoing agony of loss that ebbs and flows as life marches on. Especially as life marches on.

Because grief marches in place.

The unberable lightness of being

It's not like I'm walking on sunshine and floating two feet off the ground or anything. But this morning it dawned on me that life is sort of good right now. Uncomplicated in a way it hasn't been in, well, in virtually my entire life, really.

We're not trying to have a baby anymore. So my body has ceased to be a science experiment/means to an end/poorly constructed baby-making machine. It's just my body again. Arms, legs, graying head and a busted uterus that can just fucking relax now, since it's not going to be called into action ever again.

If you listen closely, you can probably hear it sighing happily from all the way over there.

I pay little to no attention to bodily fluids. I have no idea what my temperature is on any given morning. I've stopped shelling out a fortune on sticks designed to be peed upon. I no longer mark the passage of time in 28-day units. I don't have to decide if just one more surgery or fertility treatment will do the trick. I no longer live in fear worrying about what one more loss would do to my already-fractured brain. And, perhaps best of all, the end of a cycle doesn't shatter me to my very core like it used to. Every single time.

People are no longer depending upon my body to produce a child, grandchild, cousin, niece/nephew. No one's crossing their fingers or praying or hoping or giving us knowing glances. The pressure cooker existence I once boiled away in has cooled to a lovely lukewarm bath.

The guilt is still there. It will always be there. I couldn't produce a living child, grandchild, niece/nephew. But at least the trying is over. We can all just agree that I failed and move on.

Or I can agree that I failed and everyone else can be mad at me for calling myself a failure.

Either way, we all move on.

And then there's the other shoe. The one that dropped on January 4, 2011 when I got the call that Dad had died. He got horribly sick (sicker than he'd ever been, which is saying a lot since he'd been in fragile health for 27 years), and after tenaciously battling a host of medical issues that would have immediately felled a lesser (or less stubborn) man, he quietly slipped away in the night.

I no longer panic when I hear the phone ring. I don't dwell on what it's going to be like "after" because I'm living it now. My stomach doesn't clench in anxiety when I pull up to their house. I don't have to wonder about what kind of day he's having - if he'll fall, if he'll die in front of me, if he'll be so confused he won't know who I am. I don't ache as I watch him suffer unthinkable fatigue, pain and indignities. Most of all, he is no longer suffering.

As I said yesterday, I am breathing these days. The good kind of breaths. Better than I've breathed in almost as long as I can remember.

My life is more about me than it has been in a very long time.

I'm not 100% carefree or without responsibility. Let's not get ahead of ourselves, here. But the fact is that I am living a more peaceful life right now. Work is plentiful enough, My Beloved is still beloved, my mom is in relatively good health, and I passed my annual physical with flying colours (which is astounding given the grief eating I did during 2011, not to mention all the stress).

Sorrow is still an ever present interloper, but it's a snarling beast I've mostly learned how to tame. I know to lure it into its cage when I need relief, and let it out to be walked when it needs to stretch its legs.

We have it mostly figured out, me and Sorrow.

So life is just...life these days. Quieter, less complicated and much prettier than I've seen it in a very long time.


I could get used to this.

The long goodbye

The other day I read an article about the formalized mourning rituals observed by Jews. Being married to someone who is half Jewish, I'm familiar with some of those rituals - like sitting Shiva for 7 days, and the unveiling of the monument one year later.

But what I didn't know is that they understand that that grief takes a solid year to truly process. They figured this out, wrote it down, handed it out and now they all just know to treat each other a little more gently when the heart is healing post-loss. Imagine that.

It has now been one year and five days since my dad died.

Losing Thomas taught me that you don't get over a loss, you simply learn to live with it. So I knew I wouldn't magically feel like "the old me" when the sun rose on January 5th. I knew I would feel like the new me: the one who now lives in a world where my dad does not. The one who lost someone whose voice has been dear to her since before she was even born. But the one who is, nonetheless, still alive.

That's why I also knew I'd probably feel like I could take real breaths again on January 5th. Long, slow, deep ones - not just short, quick gasps designed to keep me alive.

And I did.

The hellish first year is behind me.

And I can breathe.

Do as I say, not as I do. Obviously.

Okay, so here's the thing about grief: it makes you sooooo tired. I'm sure it's that and not the nine zillion calories I eat every day in an attempt to smother the grief with Nutella and wine.

Because that's what I do. It's been my modus operandi since Thomas died. I try to kill grief with food, or somehow disable it with credit card transactions (like when I bought two pairs of shoes on the way home from errand-running this afternoon).

Both are effective, but only fleetingly. Somehow I'm still pretty sad. And kind of fat. Huh.

Oh, shopping and eating do work in the moment, of course. Spectacularly so. A big spoonful of Nutella completely eclipses EVERYTHING for the 4 seconds it stays on the spoon. And the rush of finding two cute pairs of sandals that actually fit my chubby feet? Bliss that repeated itself when I got home and tried them both on again.

The afterglow is pretty short-lived, unfortunately. But I'm no quitter. Eventually I'll find just the right combination of eating and spending to kill grief forever. I'm sure of it.

Right now I'm trying salami and beer. And later I'm planning to hit the cosmetics aisle at the drug store.

I'm nothing if not committed.

Of course, I kid. I know that what I'm doing is stupid and unhealthy and fruitless. But I figure since I know that it's a crap plan of action, it's totally okay to continue along this destructive path for at least a little while longer. Because knowing is half the battle and blah blah blah.

Shit continues to happen. I will self-medicate for as long as it takes me to not need to self-medicate. I'll get there. I have before and I will again.

But for now, beer and salami it is. And some new lipstick later.

Cheers!

A Widow's Story

Yesterday I heard a portion of an interview with Joyce Carol Oates on the CBC radio. It was about her new book, A Widow's Story, which is a memoir based on the time after the sudden loss of her husband of 47 years in 2008.

I listened to it with the kind of rapt attention you probably shouldn't when you're driving. I can't remember getting to my destination.

It's just that she spoke so honestly and simply about loss. She was unapologetic about the ravages of grief and the toll it took on her after her beloved husband died. She didn't look on the bright side. She didn't claim to have learned anything from it. She didn't praise it for making her stronger, more empathetic or more patient with others. She didn't use it to find ways to do good.

She just endured it.

And coming from the world of babyloss where we're always trying to make sense of it and find something good to take away from it, this was a breath of fresh air.

Losing someone you love is bad. Period. It hurts, it isolates, and it scars.

I'm sure, like everyone who struggles to find meaning in loss, she has done some of the mental gymnastics the newly bereaved engage in to keep the ground from moving and shifting beneath them every moment of every day. She probably has tried to make sense of it and find lessons from it.

But she didn't say she did. At least not in the interview. She said she made a nest of her bed, taking refuge there through sleepless nights surrounded by books to comfort her. She admits she thought about, but then dismissed, suicide. She said she regularly impersonated the "old Carol" while she was working as a professor at Princeton, then returned home to be a grieving widow once again.

I haven't lost my husband so I have no idea what this particular of grief is like, but so much of what she said resonated deep within me. Especially the notion that we impersonate the person we used to be. I suppose it's some sort of ancient survival skill, not unlike the way cats can literally be dying but still successfully pretending to be a-okay.

I've done it. I still do it.

And then I come home and I can be the girl who lost all her babies and then her father.

I ordered A Widow's Story for my mom, and I'll read it when she's finished. There's something deeply necessary about people sharing the grief journey, and I'm so grateful that people who have walked this sad, lonely road do talk about it.

For us, and for themselves.

Tired

I'm so tired of being sad. Bone weary exhausted, really.

I'm not wallowing. Honest. I have newly-purchased cans of paint and two bathrooms ready and waiting. I have crochet projects on the go. I have work scheduled. I have a to-do list that I follow. I have lunch plans with a friend on Friday.

The thing is, when I'm in the midst of the busyness, it's all good. But when I pause to figure out what that nagging feeling is - that sense that someone is watching me, that something is wrong, that I've had a bad dream, that I'm late for something - I realize it's sadness quietly waiting to be acknowledged.

And so I cry. I cry for my dad - for all the pain and indignities he suffered in the months before he died. I cry for me, because I miss him so much. I cry because I haven't yet figured out what to do with this unplanned life. And I cry because that scares the bejeezus out of me.

Fate has been clever and methodical in the doling out of disaster. A miscarriage in 2003, a miscarriage in 2004, Thomas' birth and death in 2005, fertility treatments in 2006/7, a miscarriage in 2007, more fertility treatments in 2008, dad's illness in 2010, his death in 2011. These things seemed to have spaced themselves out, giving me juuuuuust enough time to recover from one disaster before tossing some new horror my way.

The cumulative effect is like sitting beneath a pile of elephants trying to smile while I'm being crushed to death.

This is life. I know that. No one escapes unscathed, and in the midst of the horror is unimaginable beauty. I know that. I know that. I know that. There are bigger disasters. There are crueler fates. There are harder lives.

But, still, this is mine.

The other day I was telling My Beloved that I barely remember the girl I was before that first loss in 2003. I miss her, I told him. She's like a brightly-coloured character in a book - happy and innocent. Not without worry or sorrow, but still buzzing with light and energy.

In his wisdom and kindness he acknowledged her loss, but told me that the girl he's now married to is not just a shadow of the one he once knew. I am better, he says, in some ways. I didn't ask for specifics. I was too stunned and overjoyed to care.

Better. At least in some ways. That's good to know.

I know the fatigue of sorrow will wane. And maybe I'm thinking too hard; worrying about it too much. It hasn't yet been three months since the most recent elephant, after all.

But it would be nice not to be so grief-weary. So very, very nice.

Missing

Years ago, not long after Thomas died, I read a post by a fellow babyloss blogger who was struggling with an overwhelming desire to make herself look as outwardly grief-stricken as she felt inside. She wanted to cut her hair, tattoo her body, cut patterns into her empty stomach - do something radical and drastic so that people would know, just by looking at her, that she was broken on the inside. She wanted the mark of grief.

It scared me. But I understood.

I started thinking about her - and the strange need for grief to be known and recognized - this morning at Mass. I'd made small talk with one of the office staff on the way in - a woman who helps me organize the annual Mass of Remembrance for bereaved parents. We both hate the heat, but wished it was a little warmer today. And isn't that funny, because in a few months we'll both be wishing for a crisp day just like this one. And isn't it a shame that while it's going to be warmer tomorrow, it's going to be rainy too. Blah, blah, blah.

When I finally got into the church, I sat down and started thinking about my dad, as I often do when I'm alone and quiet with nothing proper to distract me. Driving is a particular hazard. It often ends in tears.

Anyway, I was thinking that I display no outward sings of grief. I'm clean, my hair is freshly cut, I wear makeup (a necessity to hide the circles and bags my 40s have gifted me), I smile when appropriate, I attend meetings, I work. I am functional in all the ways that matter.

But inside there is so much grief. And no one knows.

It makes me feel like I'm existing inside a plexiglass dome, visible, but somehow unreachable. And thoroughly unknowable. Most importantly, separate. Always separate.

I started wondering why exactly it is that we need to share grief with others. It's such a personal thing that no two people feel or experience the same way - even if they've lost the same person - and yet we're desperate to find people who will listen to us when we need to talk about the aching emptiness a loved one's loss has created in our lives. We want to share, in explicit detail, what it feels like to be without that person; what it's like not to hear their voice tell us we are loved, what it's like to see the empty chair they once sat in, what it's like to want to tell them a story and forget, for a split second, that they are no longer there to hear it.

I want everyone to know how much I miss my dad. How I still cry for him. How agonizing it is to be separated from him. How I still can't fathom that he's really gone and is never coming back.

How I feel like I'm once again hollow inside, waiting to be filled up with whatever it is that filled the empty space Thomas left behind.

And no one knows.

And I don't know why that matters. Except somehow it does.

Grief in 30

What I know about grief:

1. When it moves in, it brings every piece of baggage it can along with it.
2. It steals your sleep, your concentration, your confidence, your energy, and your peace.
3. It feels endless.
4. It gets better.
5. It gets worse.
6. It's totally unpredictable.
7. It makes you feel desperate.
8. It makes you feel incomplete.
9. It makes you feel scattered, scared, and lonely.
10. It thrives on the chaos it creates.
11. It changes your priorities.
12. It alters your perception.
13. It lies in wait.
14. It attacks without warning.
15. It bleeds you dry.
16. It makes you more compassionate.
17. It makes you more paranoid.
18. It makes you need friends, crave comfort, and beg for mercy.
19. It is ruthless, relentless, and insatiable.
20. It makes you vulnerable.
21. It makes you weep.
22. It makes you scream.
23. It chokes off your words.
24. It strangles your joy.
25. It claws at your heart.
26. It rakes at your mind.
27. It thunders in your ears.
28. It blinds your eyes.
29. It cripples, maims, and scars for life.
30. It makes you wonder if the people you're missing would even recognize the person you are now.

And each day you survive living with it, you win the tiniest little piece of yourself back.

I want happy

Slow work weeks for freelancers are distressing. Slow work weeks for grieving freelancers are dangerous.

With nothing pressing to occupy your mind, it's especially easy to get lost down an internet rabbit hole. Eat the wrong things. Dwell on what-ifs. Wander aimlessly. Bother sleeping cats. Then eat the wrong things and start the whole cycle all over again.

Lather, rinse, repeat.

Today I found myself curled up on the only cat-free spot on the bed begging my Dad - who I'm only partially convinced can even hear me now - to help me find happy again.

I want happy.

My Beloved and I lost our first baby a little over 7 years ago. I have spent almost all the time since that moment being afraid or sad. Desperately so in both cases. Sometimes at the same time. There were bits of hope and moments of happy sprinkled in, sure, lots of them. But mostly I feel like I've been sad for such a very long time.

I want happy.

So I sat up and made a mental list of things that make me happy, thinking that was a good start. But I cried the whole time. I am responsible for my own happiness, but that responsibility is so overwhelming right now that I don't even know where to start. It makes me tired and defeated just thinking about the effort of it all.

I want someone to walk in with happy on a silver platter. A great huge plate heaped full with more happy on it than I could ever possibly need or want. An excess of happy. Effortlessly won.

But that's not the way it works. So I'll press on as I have been; as best I know how.

I'll get lost online, eat crap, cry, move quietly from room to room, and pester the cats while I wait for work.

And while I try to figure out a way to find happy again.

The sweater

I have my Dad's sweater hanging in the closet in the sitting room. It's the butter-yellow one with the faux wood buttons that my mom made so long ago that no one can remember exactly when; the one he wore to dialysis all summer long; the one that was finally deemed too raggedy and was replaced by a navy blue store-bought cardigan in the Fall.

But it slipped into rotation every now and again. And it's what he had on the last day he was alive. I found it at the bottom of their basement stairs, along with the shirt he'd worn to dialysis that Monday, hastily tossed away out of sight while my mom and sister waited for the coroner. And then, finally, the funeral parlor to come and take him away.

I brought it home and washed it. And I hung it in the closet that would have been Thomas'.

I'm not sure what I'm going to do with it - it's pilled and has a small blood stain on one arm caused by the ever-present itchy rash that plagued him. A side-effect of dialysis, we were told.

But I had to have it. I sat with him in the waiting room so many times as he wore that sweater. I watched him walk into the treatment room, slightly hunched and shuffling, with that butter-yellow sweater hanging off the shoulders that used to be broad and strong. I'd retrieve it from his bedroom when he'd forget to put it on. I'd help him into it. I hugged him hello and goodbye so many times while he was wearing it.

I needed it.

Maybe I'll wear it. Maybe I won't. But I need it here with me just the same.

I've only just started not needing to have lights on at dusk in rooms we're not using. When Thomas died, nightfall suffocated me, and I wanted to banish it before it had a chance to take a choke-hold this time.

But it's been a kinder sort of healing, and after not quite two and a half weeks the lights aren't necessary any longer. I've also stopped needing to have the TV on while I fall asleep. We still do it every once in a while, but I don't panic at the thought of falling asleep in the dark anymore. And my brain is quieter and lets me slip into sleep much easier now too.

So there's the sweater. And there's the darkness. And for now, I'm living comfortably enough with both of them.

11 Days

My dad has been gone for 11 days.

Separation by death is agony. The new, awful distance between you rubs your soul raw, shredding you from the inside out as you push forward through the busyness of sleeping, eating, working.

I keep thinking of things I want to tell him. I used to stockpile bits and pieces to talk to him about while we were in the dialysis waiting room - things to distract him or amuse him. Sometimes they were things that were so exciting to me that I couldn't wait, and told him in the car on the way to the hospital.

He was the kind of person who you wanted to run to when you had something to say that you knew he'd want to hear. He lit up. He laughed from his toes. He pounded his fist with sympathetic rage.

Sometimes, for a fraction of a second, I forget. And then I am frozen with this thing I want to say sitting quietly unspoken in my head as I remember. 

When my mom woke me that morning to tell me he'd died in his sleep, I didn't cry. I hung up the phone, looked out the window and thought, "So this is what it looks like without him here."

It looked the same. And I couldn't understand how that could possibly be.

I miss him in a way I can't miss Thomas - and in a way that confused me for the first few days. There's a hole where Thomas should have been, but there's a hole where my dad was. In those first, awful days it felt so much worse than when Thomas died.

Because I knew my dad.

I've finally decided that it's okay to miss them differently. I don't know why this preoccupied me so much, but I was worried about missing one more than the other. I was worried about what that might say about the love I had for each of them.

But as it turns out, I love them both and miss them both - for a million different reasons. And for two common reasons: because we three are a part of each other, and because they both belonged to me.

His hands are gone. He can't hold mine anymore. But I feel him guiding me through these sad, strange days - urging me onward and reminding me that life does go on. And that it can be wonderful, even still. 

Because he led by example.

The night he died - before I even knew he was gone - I cried quietly in bed wondering how on earth I'd live without that love when the time came.

I now know that it's still there - that his love will always be with me.

And the friends who came to the visitation and the funeral - and who send cards, flowers, chocolates, food, messages and Mass cards, and left treats at my door - have demonstrated that there is abundant love to be had all around me. I'm once again in grateful awe of the way friends seem to find a way to fill the awful empty spaces with their concern, friendship and love.

I miss my daddy.

But I'm doing okay.

Godspeed

On January 4th, sometime in the wee hours while he was tucked up in his bed, my dad's sweet and much-loved heart quietly stopped beating.

I'm sure I will be able to speak more eloquently about this in the days to come, but right now I'm spent. Yesterday afternoon, under cold but mercifully sunny skies, we laid him to rest in the same cemetery where our Thomas lies.

And I miss him like crazy. I can still feel the last hug I got from him on Sunday night after dinner. Tight, tight, tight, despite how incredibly weak and frail he was. And as he held me, he kissed me on the head as though I was a child again.

I lost my son - my only child. I know that putting one foot in front of the other is how you carry on despite the suffocating grief and sorrow's unrelenting fatigue.

But I miss my daddy. I miss him so very, very much.

Don't forget...

Lately I've been carefully reminding myself to prepare for the emotional onslaught of Christmas Eve, which seems to catch me off guard every year.

The first one without Thomas I spent cleaning - manically cleaning - and sobbing. It has not gotten much better. But that's because I kept forgetting how shittastic Christmas Eve is, for some reason. It's fresh agony each year thanks to my surprising inability to retain useful information like: CHRISTMAS EVE SUCKED LAST YEAR BECAUSE I WAS VERY, VERY SAD.

As the years have passed there's been noticeably less frenzied cleaning activity on Christmas Eve (of course that would be the first thing to go...), but there's still a debilitating amount of very raw sorrow in my heart on the 24th.

It's such a little kid day - my most favourite day of the year when I was small. So much magic in the air. So much promise. So much to look forward to.

And now, of course, there's markedly less magic and promise in my life. And the sorts of things I look forward to are having a schooner of wine when I get home from taking my dad to the hospital, or knowing there's a chocolate bar My Beloved has stashed away in the freezer for me.

See? Wine and chocolate. And I was going to mention something about fleece sheets, but that's just too obvious.

So I've been reminding myself that Christmas Eve is coming, pain and all, because I think maybe if it doesn't sneak up on me, it might not be as bad as usual.

Plus this year I'll be spending some of it in dialysis with my dad - which isn't necessarily merrier, but, well, different. And different is good, I find. Even when the different is actually bad, different.

I don't know for sure if being prepared will help at all - but at least I'm doing something beside waiting to wake up on Christmas Eve to a crushing sadness I'd forgotten would come.

Yeah, it's just not fair

Life is such a mental exercise sometimes.

Yesterday morning as I was getting ready to leave to take my dad to dialysis, I suddenly stopped dead in my tracks, momentarily overwhelmed by what a seemingly constant struggle life has become.

I'm still trying to navigate my way through the muddy waters of childlessness (complete with new and dazzling special effects and stomach churning surprises at every turn), and at the same time I'm watching my dad slowly slip away, and desperately trying to cope with the grief that creeps into my weary head when I think of how little time I know he has left.

One of the older dialysis patients had his wife, daughter, granddaughter and two great-grandsons with him in the waiting room yesterday. The oldest boy, just big enough to be out of a stroller, was simply booming with little boy energy - something pretty foreign in a waiting room cluttered with wheelchairs, motor scooters, oxygen tanks, and tired patients.

I couldn't help but smile at them.

And then I couldn't help but feel empty as I watched the sweet scene unfold in front of me. My dad is easily as old as that great-great grandfather. I looked at their big, growing family, and I just felt so sad and defeated. And then, of course, guilty for not being able to give my family the extra light and life that two little boys - or even one little boy - can bring.

Light and life are markedly absent from our family right now.

I stared at the boys and their mom and her grandparents wondering what it must feel like to have so much pulsing, vibrant, loveliness surrounding you in such sad, desperate times. And I thought about how sweet it must be to live in a world where the proper order of things (with its tidy, A always follows B, reality) provides a measure of comfort and peace during difficult times. Old people get sick and die while babies are born, live, and nourish the family with fresh hope.

I couldn't take my eyes off the family. Watching them was an exquisite sort of agony, but I just couldn't look away. Mercifully, they left soon after their husband/father/grandfather/great-grandfather was called into dialysis.

And order returned to my world. Just me and my dad. No little boys trailing along behind to remind us that life does go on and that we will not be forgotten.

I've been trying, of late, to focus on my blessings - of which there are many - to keep myself from sinking into a self-pitying funk from which there is no return.

It works. Mostly.

But I'm still angry that this is my life right now. I'm angry that we're surviving more than we're living. I'm angry that joy has to be so hard won. I'm angry that my dad is suffering so much, and that we're all suffering the helpless agony of not being able to make him better.

It's not fair, it's not fair, it's not fair, it's not fair!!

But I know it's up to me to figure out a way to pry the good from all this and make my life about more than just the cumulative effects of its losses and sorrows and struggles.

I just hope I can muster the energy to do it. Again.

Of course it hurts. Yes, even still.

The other day I read a blog post by someone who is much more willing to admit her brokenness than I am. She is not ashamed of it the way I am. She is not afraid of it, nor of what people think of it.

I'm not sure she even thinks of it as brokenness, as a matter of fact. Come to think of it she's probably right, dammit.

The gist of her post was that infertile women who claim to be okay with being around babies are lying to us - even to those of us in the same boat - and to themselves. I'm paraphrasing, but that's basically what she was saying - that those of us who are childless not by choice are never completely comfortable being surrounded by the things we wanted most in the world and can never have.

It makes sense, really. Say you want a drink of water really badly, and then say you can never have one ever again. Ignore the fact that this would, of course, eventually kill you, and just imagine how agonizing it would be to be surrounded by clean, crisp, cold water that you can never, ever have. Ever.

It would be difficult - painful even -  to go to a cottage, or a beach, or do something as simple as wash your dishes or have a long, hot bath. Touching the water but never being able to drink it and quench your thirst would be absolute torture. Probably forever.

So it really does make sense that those of us who wanted children but haven't been able to either conceive them, carry them, or bring them home alive would find exposure to children painful on some level every time. Probably forever.

It makes perfect sense.

And if I'm honest (which I don't always like to be when it comes to this sort of thing because I want people to think I'm strong and lovely), it really does always hurt to be around children. It's not a life-threatening gunshot to the head kind of pain anymore. But it is still there. And it's uncomfortable.

I would disagree with the blogger's insistence that the infertile never want to be around children (and are lying if they say so) because there are times when I genuinely do want to be around the children I love, even though I know it will hurt at the same time. Because I love children, and I especially love the ones in my life.

So the pain is just a side effect of exposure. And I can live with that. I have no choice, of course, but I really can live with it - especially since I've learned coping mechanisms that help me deal with the lingering after effects.

Those coping mechanisms often involve chocolate, wine, and shopping - but still, they work.

But I do wish I'd had the wherewithal to say no back when the pain really was like a shot to the head. When newborns were thrust into my arms by well-meaning friends who obviously thought that it would be a salve on my broken heart, and when new mothers (inexplicably, under the circumstances) launched into birth stories and tales of breastfeeding that seemed positively endless. I wish I'd had the courage then to say, "I'm sorry, but as happy as I am for you, hearing this much detail is a little painful for me right now - and no, I can't hold your baby either."

I wish I'd cared more for my own feelings than the feelings of others back then. I wish I'd known that it would have been more than okay for me to retreat to the safety of my home (or my car, or a bathroom - or anywhere where there weren't mothers and babies) when all the babyness around me threatened to suffocate me. I wish I'd known it was okay to protect myself and my barely beating heart.

I'm sure the unsolicited immersion therapy can be at least partially credited for shoving me along to the place I'm at now. I can look forward to spending time with a child - and in some cases I'm the one who initiates it - knowing full well that it's also going to hurt, but enjoying it despite the ever-present ache.

But the point is, I do still hurt. And I need to stop being ashamed of admitting it. And I need to stop thinking I'm broken because of it. And I need to stop thinking I'm less of a woman for feeling it.

Talk, talk, talk, talk, talk

My book was talking to me last night.

Feeling wide awake and vaguely tense (which could have been all the sugar I ate at the CNE yesterday messing with me), I decided to read myself to sleep. It usually works like a Valium-induced charm, but it failed miserably last night. In part because the final 150 pages of the book were gripping, but also because it would not. shut. up.

Talking books are such a nocturnal buzz-kill.

"You make a life out of what you have, not what you're missing", it said to me.

I hate when books are smarter than I am. And I hate when they get all up in my face, trying to teach me valuable life lessons when I'm just trying to get to sleep after a vegetable-less day of total crap eating.

Book was right, though. What was, rather miraculously, left standing in the bloody aftermath of my quest for a child is what I'm building my life upon. It doesn't mean that what (or who) is missing isn't important and hasn't changed me, forever altering the course of the life that remains. But what I snuggle up to each night, hold hands with in a crowded midway, and share my rocky road cheesecake with is what's here.

And my God, it's good.

So, that was nice. A bit of a slap upside the head, but I can't say it's terrible to be reminded that it's important to readjust one's focus every now and then. Book meant well.

"A lost child follows a mother all her life", came just a few pages later.

It screamed through my body and brain, that phrase, with its searing truth. The tears finally came when I read Book's final chapter, closed it, and turned out the light.

Thomas would have been starting Kindergarten today.

I lay on my back with my hands on my belly, the empty tomb where he once rolled and kicked and lived. I cried softly for him in the dark. I whispered his name.

Book was probably thoroughly disgusted with this wanton display of ingratitude for the life I have, especially after it had just reminded me that what I have is pretty sweet, all things considered. But Book can suck it.

I finally got up, took some deep breaths of cool night air at the window, and found a cat to cuddle. Sleep inducing solace eventually came from the Internets. The people inside my computer are as wise as Book, and infinitely more empathetic. Messages from four night owls in response to a pitiful Facebook status gave me the comfort I needed for sleep to come.

And it did. I curled up next to My Beloved, a toothless old cat tucked in beside us, and smiled as I dozed off.  Because books are smart, friends are kind, and darkness makes you see the unfathomable beauty in the light.

My mother's kitchen

I was standing at my mom & dad's kitchen sink this afternoon, washing up the dishes I'd used to make a meatloaf for their dinner, when the smell of browning meat and simmering chili sauce bubbling from the oven carried me back to another time. To the same place, my parents' kitchen, but to a time when I was a child and my parents were young - and they were looking after me.

And the warmth of that scent memory flowed through me, slowing my breathing, relaxing my body.

I inhaled deeply, trying to pull more comfort from the air in my mother's kitchen. I looked out into the yard where I used to skate on rinks my mom flooded every winter, where my grandma shoveled paths in the deep snow, where I played in the sandbox and lay on a blanket in the sun listening to 45s on my sister's Mickey Mouse record player.

I remember my dad with black hair, taking steps two at a time. I remember my mom wallpapering the stairway, standing on homemade scaffolding without a trace of fear.

And now they are old. And I have woken up 1964 times without Thomas. And life is so different than it was, and every day I find myself sorting through some sort of grief. Sometimes newly realized, sometimes familiar and worn.

There are moments of peace and moments of despair. Moments of joy and moments of sorrow. Always, there is light and dark.

And that's the way it is. Right now, in this aching time as I watch my parents failing and I look into my future and see just a handful of us left and no one following behind; that's the way it is.

This, as it turns out, is what it means to be a grown up: feeling pain, but taking strength from lovely memories and finding moments of comfort in my mother's kitchen.

It would be funny it was a character in a movie

I'm not going to lie. I've always had a touch of OCD; a special penchant for re-checking the previously checked, worrying about catastrophes that never come, and just generally fretting needlessly.

Virtually no amount of calm reassurance from cooler minds is able to convince me that someone besides myself can check things properly - or, more importantly, will remember to check everything.

During stressful times it's worse. On Christmas Eve, for some odd reason, it's next to impossible to control. Leaving the house to go to my in-laws for dinner involves frantic racing in and out of rooms to ensure that everything is locked, turned off, unplugged, stored properly, sealed, closed, put away - that the whole house is thoroughly, unequivocally safe and sound.

Why I think some catastrophic event is going to happen on Christmas Eve is beyond me. But it sits in my brain and taunts me with its fiery, very un-Christmas like possibility.

In the years since Thomas died, I've noticed that while the OCD (which is self-diagnosed, thanks to my Internet degree in psychology - I also have one in reproductive endocrinology, by the way) isn't necessarily any worse, it has expanded in scope. Morphed into something new.

Now, it seems, I can turn even the most benign non-event into a catastrophe-in-the-making. If there's a way for someone to die because I dropped a stray elastic band in the living room and forgot to pick it up, I'll imagine it. And it will haunt me until I retrieve the elastic band and dispose of it properly.

Only then is peace restored. Only then are those around me safe. Until, of course, I misplace a paper clip.

Do you know the myriad ways you can be injured by a paper clip? Sweet Jesus, do you?

I know where this comes from. Of course I do. Five people died on my watch. I absolutely do not want to be responsible for any more deaths - I can't be. I just can't. So my spastic little brain spends its time calculating the probability of mortality of all those around me at any given moment as I wander through the day living, and checking. And re-checking. And pointing out dangers to others because it's my new responsibility to keep everyone safe - like I'm some middle-aged, chubby, neurotic little suburban superhero.

I've been quiet about this. I fully recognize the batshit craziness of it all, so it has always seemed best just to continue picking up elastics and keeping it all to myself.

But then, as is so often the case in this wonderful virtual world of gut-spilling, I found a blogger who does it too. A blogger who totally gets it.

She wisely pointed out that once you've seen death - once it has crashed in unannounced and violated you in the most horrific way imaginable - you know it's out there. You know the unthinkable is actually possible and that it can come when it is least expected. Like when a baby dies the day after it's just been born.

And you can't un-know it. You can never un-know it. And it taunts you, that knowledge. And it makes you think elastics can kill.

Long slow sigh. There is so much mind-fuckery in grief. So much endless work to soothe a mind so thoroughly and meticulously shattered.

It's all we can do

I read a blog yesterday that has had me thinking ever since. No mean feat given how busted up my weary brain is these days.

The blogger was wondering aloud if she still belonged in the dead baby mama"club" since, after losing her first child, she has gone on to have a second, and is now pregnant with her third. Her concerns seemed to be for those of us who are still childless, who she believes may not think she belongs anymore because she is a live-child mother.

I'm not going to lie. I have thought a lot about the whole "us vs. them" situation over these last few years of childlessness. There are just a small handful of us left who have lost and not been able to gain. We are the minority, and not an especially vocal one, for the most part. We often just watch from the sidelines, unsure of what to say or do next. In life, not just in blogland.

It's part of the reason I quietly disappeared from the blogosphere last summer. We'd decided to stop trying, I wasn't parenting living children, and having lost the last of my babies two years earlier,  I just didn't know what was left to say - or who was left to read any of it anyway.

We move on. It's what we do, we baby loss survivors.

So I faded away. Until I realized that there are still volumes left to speak. Of course there are.

Because, as it turns out, moving on doesn't mean you have nothing more to say. You just have different things to say instead - a whole different voice to go with your whole new life. And for me, it's all about coping with a life that looks nothing like I expected it would. It's about grieving for my lost children, sure, but it's also about grieving for my lost family. I constantly find myself contemplating what that loss will look like when I am old. When, maybe, I am well and truly alone.

We are not what you'd expect. We are two - not three, four or five as we might have been had things been different.

And yes, in many ways I do feel like I don't belong in the same category as the babyloss mothers who have gone on to have living children. I can't understand their new world anymore than they can understand mine. But I'm also uncomfortable with the notion of putting people into categories and neat little boxes. I feel different enough without actually defining and labeling myself as such.

We're all different. Even amongst those who have gone on to have living children there are differences. I'm sure this must be true.

We come from a common place of grief, but we fan out from there, moving along different paths, in different directions and on into different lives as we continue to cope with our loss and sorrow in the best ways we know how.

My road brought me here, to a childless existence with My Beloved and our motley collection of felines. Sometimes I limit my exposure to pregnancy, babies and children when my heart is feeling too tender. Sometimes I seek out ways to interact with the children around me whom I love when that same broken heart is aching for contact with wee ones. Because my soul still longs to mother, even after all this time.

I think it's about respecting each others' journeys and recognizing that we're all doing the best we can with the burden of sorrow we were handed. Until someone gives me a manual for this grief, all I can do is what feels right for me. And that's all I expect from my sisters in sorrow.

We do the best we can. All of us.

Thanks, Kitty

On Saturday morning we had to put My Beloved's cat to sleep. Kitty, at 17, had lived longer with My Beloved's parents than with him after he was forbidden to take her with him when he moved out of the house.

But still, she was his. And we had to make the agonizing call on Saturday morning after the vet ran tests through the night. It was the right call, of course. Neither of us wanted to prolong her suffering, and she was indeed suffering.

But still. But still.

As we were driving about in the bright February sunshine later that day trying to amuse and sooth ourselves, I had that odd, familiar feeling. We were at a red light and I was absently watching traffic passing in front of us. The cars drove by, the people inside oblivious to the sorrow I felt for the little orange cat I'd said goodbye to the night before.

And it all felt familiar. So familiar.

It was like I was wrapped in gauze, staring out at the bright, functioning world from within a filmy layer of sorrow. Both part of the world, and yet somehow totally removed from it. Seeing it all, but not fully engaged in any of it.

It's the way I spent most of my 30s. Losing babies and losing Thomas and sitting in a tiny cocoon of grief, detached from the world around me.

Of course, Kitty was a cat. And as sad as it is to lose a pet, the sorrow eases much more quickly. The world won't wait long before pulling you back into its warmth and brightness in its eagerness to show you all the joys and beauty it has to offer.

But not so when it's a child you're grieving for. The gauze is thicker. The time it takes to shrug it off and truly see again is much, much longer.

I knew I was in full-on survival mode when I was in the first throes of grief with each of my babies. I knew I was absorbed in my pain and I did feel a sense of detachment from the world and people around me.

But it wasn't until Kitty died that I realized just how isolating that grief is. It came and went with Kitty - she wasn't mine and the length of that immediate shock and sorrow was appropriate for the situation. But it lingered for months, maybe years, after Thomas died. I just didn't realize it until I felt it again - until I saw the world through the gauzy lens of sorrow once more.

You don't know how much progress you've made until something like losing a cat reminds you exactly how far you've come.

And I have come far, as it turns out. I really have.